Why Must My Children Hurt?

by Cyndi
(Tennessee)

HI, I am a wife and a MOM and I am dying of colon cancer....hmmm almost sounds like the beginning of an AA meeting. Only wish I could be as in control as they are.

Well it started in April 2005- we just got back from Cancun and I was on top of the world. Only problem I had not had a BM for a week. Thought it was the food and travel and the pain would go away. Went to ER, within a week I was on radiation & chemo. Then they removed a 5 1/2 inch tumor.

Wow - more chemo then remission. Then a year later I find out there are spots on lungs, now liver, and we have done all FDA approved drugs, nothing works.

I am 44 yrs old, been married since I was 22 to the same man whom I cheated on and was forgiven and we managed to work it out. We have three children, 15 acres and I love him and my kids more than the air I breathe.

Oh yeah, did I mention we are going to be Grandparents in August? LOL, yeah I have a perfect world except for this one little problem....CANCER.

Just doesn't seem fair.. my grandchildren will never remember me and I may not get to see my 15 year old graduate. Why must they hurt? Why must they suffer?, because the Government can waste billions on why a car can't get better mileage, or a bug can't live in a certain environment?

But for them to put forth a little more for cancer is out of reach.....yeah, I am angry and hurt. I guess at me too for not insisting for a doc to give a 30ish yr old woman a colonoscopy. Well there have been days I was too sick to think about this due to pukeing for weeks on end from chemo. But now those days are over as mine pretty much are too - so they say. So I think I will now try to find any trials or hospitals who will have ANY new ideas. I am so open to trying anything as I want to live very badly.

I am looking at New York, Texas, Indiana. My doc wants me to go to Sara Cannon Treatment Center but I am not so sure. If anyone has any help you can leave a message here or contact me directly as I am so open to learn all I can.

THANK YOU & GOD BLESS!
Cyndi
spoiled21ws@aol.com

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Why Must My Children Hurt?

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Jan 28, 2010
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Ideas about colon cancer
by: Anonymous

I posted this in another thread but think it might help here.

December 2006 I had a colon cancer resection and I thought I was cured. I was stage 1-2. No chemo. Last April an X-ray for another reason found tumors in my lung and Hylar region.

Nine months later I still have no symptoms, feel fine etc. I have so far elected to not have any chemo. You may consider taking Sodium Dichloroacetate like I have been doing. It has been working for me so far. Shrunk the main tumor over the course of two CT scans and there was no growth the last CT scan. thedcasite.com.

I am now looking into taking Artesunate in conjunction with DCA (Dichloroacetate). I am trying to stay away from conventional chemo while looking for a good clinical trial that shows promise.

At the moment I am looking at trials for CT-011, KRX-0401 (perifosine) and G-202. Hope to get into one of these or another like them. At least once a week a new one shows up.

I am 65 but I have a daughter who is 30. Please keep fighting and do look into alternatives. There is a lot out there and some of it works. I read the other day a futurist who said that if you are alive in 2020 you will NOT die from cancer. I believe him. I think it is possible.

thedcasite.com has stories from a number of people who have it worse than you and have had remissions. Daryl Strawberry formerly of the NY Mets got colon cancer in 1998 and it turned out to be stage lV when it returned in 2000 and he had a kidney removed. He is still alive and looked great the last time I saw him. That is more than 10 years.

Stay alive till 2020.

Good luck.

Jan 22, 2010
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Possible Alternative Treatment
by: Anonymous

Google Gerson therapy

Apr 06, 2009
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have you considered vanderbilt?
by: cynthia manley

I am the communications director at vanderbilt-ingram cancer center. Our nurses in the cancer information program would be happy to discuss option, trials with you. 800 811 8480. We are a national cancer institute comprehensive cancer center (like md anderson, memorial sloan kettering) and colon cancer is among the cancers for which we have a lot of research. I will keep you and your family in my thoughts!

Apr 06, 2009
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have you asked your doctors about combining several chemo treatments?
by: steve

Sometimes combining chemo treatments can be very helpful. You should ask you doctors what they think of that idea. Here is a web link to one drug that showed improvement in patients who have a type of genetic tendency toward colon cancer. Sometimes those are the hardest types of cancer to cure.

http://www.medscape.com/infosite/xeloda/article-1?src=0_nl_sm_0

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